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HAE Nepal
What is HAE?
HAE in brief
Hereditary angioedema (HAE) is a very rare and potentially life-threatening genetic condition that occurs in about 1 in 10,000 to 1 in 50,000 people.
› What is HAE?
HAE can be well managed with the right treatment.
› Learn about HAE treatments
What is hereditary angioedema (HAE)?
› What Is HAE?
› What are the symptoms of HAE?
› What triggers an HAE attack?
› What causes HAE?
› How is HAE diagnosed?
› How can HAE be treated?
› Clinical Trials
› Glossary
› Frequently Asked Questions
It runs in family
HAE is a genetic disorder. If one parent has HAE, there is a 50 percent likelihood that his or her child will have it, too. Therefore, it is very important to have other family members tested if you get diagnosed with HAE.
› Learn about family testing
About HAEi
About HAEi
› Board of Directors
› Regional Directors
› Operations
› Supporters
› ACARE
› Contact HAEi
Our MIssion
To lead a global network of Member Organizations and provide specially designed tools, resources, educational programs, and hands-on assistance to empower awareness, accelerate diagnosis, and champion access to life-saving HAE therapies.
Our Vision
To unite and strengthen the HAE global community, achieve a world free of barriers where effective treatments are accessible everywhere, and provide a higher quality of life for people with HAE.
Our Value
To fulfill the highest priority needs of our Member Organizations with an extraordinary level of dedication, effectiveness, and accountability, guided by compassion, kindness, and inclusivity.
News and events
News
Read inspirational articles featuring HAE patients, detailed information from our Member Organizations, interviews with HAE experts and guests at our workshops and conferences, and the latest news from the industry.
› All news in the archive
News by Topic
› Awareness and Advocacy
› Living with HAE
› Youngster Community
› Research And Treatments
› Medical Community
Publications
› Global Perspective Magazines
› Scientific Publications
› State of Management of HAE
› Guidelines/Consensus reports
Get an overview of what’s going on in the world of HAE
› Read Global Prespectives
Events
› Events Worldwide
› HAEi Regional Conferences
› HAE Global Conferences
Join us! Be #active4HAE on 16 May, when hae day :-) unites the HAE community as a focus for activities to raise awareness
› Visit haeday.org
Resouces
For patients and caregivers
› Children and HAE
› Emergency cards
› Events worldwide
› Family testing
› Frequently Asked Questions
› HAEi LEAP - youngsters' program
› Patient stories
› Pregnancy
› Social Media
› Traveling
› Understanding HAE
› Women with HAE
Global Perspectives magazine
› Read Global Perspectives
For Member Organizations
› Emergency cards
› Emergency room poster
› HAEi Connect
› HAEi FocalPoint
› HAEi Global Access Program
› HAE¡ LEAP - youngsters' program
› HAEi Research
› Hosted Websites
› Regional Advocacy
For healthcare professionals
› ACARE
› Guidelines/Consensus reports
› Scientific Publications
› Virtual Centers
HAEi Advocacy Academy is a free, online learning platform - your first step to successful advocacy
› Visit HAEi Advocacy Academy
The HAEi Youngsters' Community is a place for young people to learn, stay connected, share experiences and have fun!
› Visit the HAEi Youngsters' website
Keep track of your HAE with our easy-to-use electronic diary, the HAE TrackR app
› Download HAE TrackR app
Travel safely with your pocket-size travel partner with HAE emergency cards and HAE-relevant contact information
› Download HAE Companion app
HAE Nepal
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