Fighting HAE
Together in Nepal
Hereditary Angioedema (HAE) Nepal is dedicated to improving the lives
of those affected by HAE through awareness, education, and support.
Understanding HAE in Nepal
What is Hereditary Angioedema?
Hereditary Angioedema (HAE) is a rare genetic disorder characterized by recurrent episodes of severe swelling that can affect various parts of the body, including the face, limbs, intestinal tract, and airways. These attacks can be painful, debilitating, and potentially life-threatening.
HAE in Nepal
In Nepal, many HAE patients face significant challenges including limited access to specialized healthcare, delayed diagnosis, and lack of appropriate treatments. HAE Nepal was established to address these issues and provide much-needed support to the Nepalese HAE community.
Our Mission
We are committed to improving the quality of life for people with HAE in Nepal through advocacy, education, and support. We work to ensure that every HAE patient in Nepal has access to accurate diagnosis, effective treatment, and the resources they need to manage their condition.
250+
Estimated HAE Patients in Nepal
8
Years Average Delay in Diagnosis
30%
With Access to Modern Treatments
24/7
Emergency Support Available
Our Programs & Services
HAE Nepal offers a comprehensive range of programs and services designed to support patients,
educate healthcare providers, and raise awareness about HAE throughout Nepal.
Patient Support Network
Connect with other HAE patients across Nepal through our support groups, online forums, and annual patient meetings.
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Medical Professional Education
We provide training and resources to healthcare providers to improve diagnosis and treatment of HAE across Nepal.
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Emergency Treatment Access
Working to ensure HAE patients have access to life-saving treatments during acute attacks through our emergency program.
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Advocacy & Policy
Advocating for improved healthcare policies, insurance coverage, and recognition of HAE as a serious medical condition.
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Educational Resources
Developing and distributing educational materials about HAE in Nepali and other local languages.
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Family Testing Program
Supporting genetic testing for family members of HAE patients to identify those at risk and provide early intervention.
Learn More ➤
Impact Stories
Real stories from HAE patients in Nepal whose lives have been transformed through
support, education, and proper treatment.
Resources
Access educational materials, treatment information, and support resources for HAE patients
and healthcare providers in Nepal.
For Patients
Patient Emergency Card (Nepali)
HAE Treatment Guide
Living with HAE Handbook
Travel Tips for HAE Patients
HAE Attack Tracking Journal
View All Patient Resources
For Healthcare Providers
HAE Diagnostic Algorithm
Treatment Protocol Guidelines
Emergency Department Guide
Laboratory Testing Information
Specialist Referral Network
View All Medical Resources
General Information
What is HAE?
HAE Nepal Annual Report
Upcoming Events Calendar
Newsletter Archive
Media Kit & Press Releases
View All Information Resources
Contact & Support
Reach out to HAE Nepal for support, information, or to get involved with our mission to improve the
lives of HAE patients across Nepal.
Get In Touch
Contact Information
Office Address
Kamaladi, Kathmandu 44600, Nepal
Phone
+977 1 4444555 (Office)
+977 9801234567 (24/7 Emergency Hotline)
info@haenepal.org
support@haenepal.org
Office Hours
Monday – Friday: 9:00 AM – 5:00 PM
Saturday: 10:00 AM – 2:00 PM
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